Contact

Are you interested in learning more about Huntington’s Disease and Kristen’s journey through genetic testing? Would you like to support this education campaign with a donation? Contact Kristen Powers with any questions, comments, concerns, or ideas.

E-mail: kristen_powers[at]ymail.com

Snail Mail:

531 Lasuen Mall
P.O Box 13754
Stanford, CA 94309

 

6 thoughts on “Contact

  1. Hi Kristen!

    My name is Jenn Baron and I received my negative test results on 9.17.07. My mother, Bonnie had HD and now my sister is in stage 4 and getting amazing care just north of Minneapolis.

    I spoke to Dr. Kimberly Quaid’s class this past week about my decision making process, something I’ve done since I was tested. She told me of your amazing documentary and I give you kuddos for numerous reasons! If I can help you in any way along this journey please do not hesitate to let me know!

    I wish you all the best and thank you for bringing more light and attention to HD!

    Jenn Baron :)

  2. Hi Kristen, my family also has HD. I am a 38 yr old single mom, I didn’t find out about my mom’s HD contingency until after my first child was born. She was negative, and although I am happy to know it won’t pass to my children, I’m terrified for my cousins. My mother had 6 siblings and we have lost 4 to HD. I’ve already lost a cousin to this evil disease and now seeing several others suffering. My greatest ambition in life now is to generate awareness, recent advances speak of clinical trials of a new treatment and that means money needs to be generated. I have contacted news networks to profile our family, it’s such a small profile disease. There aren’t enough people that know about it! I think you are doing an amazing job with this documentary and would love for you to come visit our family in North Texas (Dallas area) I would be honored to learn of how you have been successful putting this into light for others and joining the force.

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  4. Hi Kristen,

    I am a 44-yo mom of three little girls and married to an amazing man. I received my positive HD result three weeks ago. The testing was triggered by significant symptoms I have shown for the past 2 years. In just a split second of hearing that dreaded word “positive” my whole life changed.

    If there is one “positive” thing that I can say about my diagnosis is that it is giving me the chance of time. Not as much as we had EVER expected or hoped for, but enough to make changes at how we look at our every day crazy, fun, exciting chaotic life and realize we have time to enjoy this. My life is not over tomorrow, next week or next year. But soon enough that end WILL come and I want every minute of my time to count.
    My sincerest blessing and support to you as you go through this journey. Just remember… time…